links-for-patients

Links for Patients and Families

Washington State

Parkinson’s Disease

American Parkinson Disease Association (APDA), Washington Chapter, Information and Referral Center supports the needs of people in Washington State with Parkinson’s disease, their families, and their caregivers through education, sponsoring support groups, and networking with resource and referral agencies. Call Zeljka Jurcevic, Center Coordinator at 206-695-2905 or email info@waparkinsons.org.

The Northwest Parkinson’s Foundation (NWPF) works to improve the quality of life for the Northwest Parkinson’s disease community through programs of awareness, education, advocacy and care. Call 877-980-7500 or 206-748-9481 or email info@nwpf.org.

The Washington State Parkinson Disease Registry (WPDR) connects people with Parkinson’s disease to the research community by informing patients about upcoming research trials and assisting researchers with the recruitment of eligible patients. Call 888-365-9901 or email wpdr@u.washington.edu.

Related Diseases

The Alzheimer’s Association, Western and Central Washington State Chapter provides programs and services designed to help people with memory loss and their caregivers and families. Contact the 24/7 Helpline at 800-272-3900.

General Assistance

Senior Services provides help for older adults and their caregivers in King County, WA by assisting in finding the right social, health care and legal services among other needed support. Call 888-435-3377 or 206-448-5757 or email info@seniorservices.org.

We welcome you to explore the UW Memory and Brain Wellness Center (MBWC) website, which represents the Alzheimer’s and Parkinson’s disease research at the UW. The site offers valuable information, resources, weekly news stories, and community event listings. The site caters to patients, families, researchers, and clinicians.


National

Parkinson’s Disease

American Parkinson Disease Association (APDA) is a national organization focused on research, patient support, education, and raising public awareness of Parkinson’s disease. The APDA, Washington Chapter listed above is one of over forty chapters around the country. Call 800-223-2732 or email apda@apdaparkinson.org.

Parkinson’s Action Network The Parkinson’s Action Network (PAN) is a national advocacy program for numerous public policy issues affecting the Parkinson’s community and brings awareness to the public and lawmakers about the effects of Parkinson’s disease. Call 800-850-4726 or email info@parkinsonsaction.org.

The Parkinson’s Disease Foundation (PDF) funds promising research to find the causes of and a cure for Parkinson’s disease while supporting those with Parkinson’s disease, their families, and their caregivers through educational programs and support services. Call 800-457-6676 or email info@pdf.org.

The Parkinson Pipeline Project promotes policies to accelerate the evaluation and approval of new treatments for Parkinson’s disease by providing a patient perspective to industry sponsors and investors, clinical scientists, and government regulatory agencies. Email clinicaltrial_topics@pdpipeline.org.

Related Diseases

The Lewy Body Dementia Association raises awareness of the Lewy body dementias (LBD); supports patients, their families and caregivers; and promotes scientific advances. Call the Caregiver Helpline at 800-539-9767 or the national office in Atlanta at 404-935-6444.

General Assistance

The Caregiver Action Network (CAN) offers resources and support for those who care for loved ones with a chronic illness or disability and address the common needs and concerns of family caregivers regardless of diagnosis or disease. Email info@caregiveraction.org.